Leveraging the PEDSnet clinical research network and electronic health record data to enhance efficiency of trial enrollment for a rare pediatric rheumatic disease

Authors

• Pamela F Weiss, University of Pennsylvania
• Levon Utidjian, Children's Hospital of Philadelphia
• Mitchell Maltenfort, Children's Hospital of Philadelphia
• Hanieh Razzaghi, Children's Hospital of Philadelphia
• Timothy G Brandon, Children's Hospital of Philadelphia
• Cassandra Muir, Children's Hospital of Philadelphia
• Cora Sears, Children's Hospital of Philadelphia
• Edward J Oberle, The Ohio State University
• Jennifer Cooper, Colorado Children's Hospital
• Kevin Baszis, Washington University School of Medicine in St. Louis
• Mary B Toth, Nemours Children's Hospital- Florida
• Esi M Morgan, University of Washington - Seattle Campus
• Christopher B Forrest, Children's Hospital of Philadelphia

Journal

Pediatric Rheumatology

Publication Date

1-31-2026

Volume

24

Issue

1

First Page

13

Document Type

Open Access Publication

DOI

10.1186/s12969-025-01181-5

Rights and Permissions

Weiss, P.F., Utidjian, L., Maltenfort, M. et al. Leveraging the PEDSnet clinical research network and electronic health record data to enhance efficiency of trial enrollment for a rare pediatric rheumatic disease. Pediatr Rheumatol 24, 13 (2026). https://doi.org/10.1186/s12969-025-01181-5 This article is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License, which permits any non-commercial use, sharing, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if you modified the licensed material. You do not have permission under this licence to share adapted material derived from this article or parts of it. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc-nd/4.0/.

Recommended Citation

Weiss, Pamela F; Utidjian, Levon; Maltenfort, Mitchell; Razzaghi, Hanieh; Brandon, Timothy G; Muir, Cassandra; Sears, Cora; Oberle, Edward J; Cooper, Jennifer; Baszis, Kevin; Toth, Mary B; Morgan, Esi M; and Forrest, Christopher B, "Leveraging the PEDSnet clinical research network and electronic health record data to enhance efficiency of trial enrollment for a rare pediatric rheumatic disease." Pediatric Rheumatology. 24, 1. 13 (2026).
https://digitalcommons.wustl.edu/oa_4/7332

Additional Links

Supplemental material is available for this article at publisher site.