Using the internet to seek information about genetic and rare diseases: A case study comparing data from 2006 and 2011

Authors

Tamandra Morgan, ICF International
Johanna Schmidt, Children's National Medical Center
Christy Haakonsen, The Harvey Institute for Human Genetics
Janine Lewis, ICF International
Maria Della Rocca, ICF International
Stephanie Morrison, ICF International
Barbara Biesecker, National Human Genome Research Institute
Kimberly A. Kaphingst, Washington University School of Medicine in St. LouisFollow

Journal

Journal of Medical Internet Research

Publication Date

2014

Volume

16

Issue

2

Inclusive Pages

e10

Document Type

Open Access Publication

DOI

10.2196/resprot.2916

Rights and Permissions

Morgan T, Schmidt J, Haakonsen C, Lewis J, Della Rocca M, Morrison S, Biesecker B, Kaphingst KA Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011 JMIR Res Protoc 2014;3(1):e10 DOI: 10.2196/resprot.2916 PMID: 24565858 PMCID: 3961701

Recommended Citation

Morgan, Tamandra; Schmidt, Johanna; Haakonsen, Christy; Lewis, Janine; Rocca, Maria Della; Morrison, Stephanie; Biesecker, Barbara; and Kaphingst, Kimberly A., "Using the internet to seek information about genetic and rare diseases: A case study comparing data from 2006 and 2011." Journal of Medical Internet Research. 16, 2. e10. (2014).
https://digitalcommons.wustl.edu/open_access_pubs/4030