Washington University School of Medicine Oral Histories
Stephen Connor Oral History
Interviewer
Bryan Sisk MD, MSCI
Files
Download Interview Transcript [PDF] (122 KB)
Summary
Stephen Connor was interviewed by Brian Sisk on May 3, 2019 for approximately one hour for the Pediatric Palliative Care Oral History Project.
Scope and Content
Dr. Stephen Connor begins by describing some of his early professional experiences and mentors who supported him as he developed his interest in death and dying. Dr. Connor explains that after several “epiphany moments” and observing some of the death and dying practices abroad, he and several other like-minded professionals said: “You know, really, we should just start a hospice.” Dr. Connor then describes his early professional experiences of co-founding some of the earliest hospice programs in the United States, which drove his career from local hospice programming to national programming and finally into the international programming, research, publications, and evidence-based practices for the new fledgling field of children’s palliative care. Dr. Connor shares stories of pivotal moments from his career journey, which spans from the beginning of the pediatric palliative field, through the HIV/AIDS pandemic, all the way to the present. He explores multiple topics such as pain management, policy, program design as they relate to palliative care across the lifespan and from domestic to global socio-economic and techno-political differences. Dr. Connor explains the many ways children’s palliative care has changed since the field developed, as well as some of the barriers and successes he’s seen. Dr. Connor concludes with his goals for the future of pediatric palliative care to be accessible, policy protected, and serving the need for bereavement services.
Biographical Information: Interviewee
Stephen Connor, PhD is a clinical psychologist, researcher, palliative care consultant, and currently the Executive Director of Worldwide Hospice Palliative Care Alliance (WHPCA), where he develops palliative care programs in Sub-Saharan Africa, Eastern Europe, Asia, and Latin America. Dr. Connor has 44 years of experience as a leader in developing and implementing hospice and palliative care programs domestically in the U.S., and internationally. He has served in numerous leadership roles in this field, including service as the CEO of several of the first U.S. hospice programs, chairing the International Work Group on Death, Dying, & Bereavement, eleven years as Vice-President for Research and Development at the National Hospice & Palliative Care Organization, and serving as a member of the Editorial Board of the Journal of Pain and Symptom Management. Dr. Connor has published over 125 journal articles, books, book chapters, and reviews. He is currently studying bereavement and health, denial in the terminally ill, outcome & global measurement in palliative care, and evidence-based care for the dying.
Biographical Information: Interviewer
Bryan Sisk, MD, MSCI is an Assistant Professor in Pediatric Hematology and Oncology and an Assistant Professor in General Medical Sciences as a member of the Bioethics Research Center at Washington University in St. Louis. He completed medical school at the Cleveland Clinic Lerner College of Medicine at Case Western Reserve University. He completed his clinical training at St. Louis Children’s Hospital and Washington University School of Medicine.
Dr. Sisk was a clinical fellow in pediatric hematology and oncology when he initiated this Pediatric Palliative Care Oral History Project. As a trainee, Dr. Sisk had a strong interest in palliative care, the approach to the suffering of children, and the history of medicine. Prior to initiating this project, Dr. Sisk performed an in-depth review of the development of pediatric palliative care as a discipline and philosophy. This research culminated in a publication entitled, “Response to Suffering of the Seriously Ill Child: A History of Palliative Care for Children” in the journal Pediatrics. However, this historical review was limited to textbooks and publications. It lacked the personal experience of caring for these children and inspiring the development of a new clinical discipline. Inspired by David Clark’s oral history of the adult hospice movement, Dr. Sisk began to plan this pediatric oral history project.
Of note, this collection of oral histories is incomplete, and many important figures have not (yet) been interviewed. Dr. Sisk’s goal is to continue adding to this collection create a rich repository of personal insights and wisdom from leaders who changed the field of pediatrics.
Interview Date
2019-05-03
Collection Identifier
OH154-S05
Length
Approximately one hour.
Restrictions
Users wishing to publish (in whole, or in part) content taken from the audio or transcript of this oral history interview must request, sign, and return a Statement of Use form to the Becker Archives. For detailed information regarding publication and use of this oral history, contact the Becker Archives (arb@wusm.wustl.edu).
Recommended Citation
Stephen Connor Oral History, OH154-S05, Bernard Becker Medical Library Archives, Washington University in St. Louis.
Disclaimer
The Becker Archives provides access to this oral history interview as a record of the past. This interview reflects the attitudes, perspectives, and beliefs of the interview participants, which may reflect outdated, biased, and offensive views and opinions. The Becker Archives does not endorse the views expressed in this interview, which may contain materials offensive to some users.
Notes
Access to the audio recording for this oral history may be obtained via approval of the archivists at Becker Library. Contact the archives for more information (arb@wusm.wustl.edu).