Washington University School of Medicine Oral Histories
Ross Hays Oral History
Interviewer
Bryan Sisk MD, MSCI
Files
Download Interview Transcript [PDF] (151 KB)
Summary
Ross Hays was interviewed by Brian Sisk on September 3, 2019 for approximately 53 minutes for the Pediatric Palliative Care Oral History Project.
Scope and Content
Dr. Ross Hays begins the interview by describing how he continued to pursue training after his pediatrics residency, transitioning to study birth defects, training in rehabilitation medicine, and finally training in bioethics. Dr. Hays was then recruited to become the principal investigator for a demonstration project by the Robert Wood Johnson Foundation titled Promoting Excellence in End-of-Life which finally allowed him to tie all his training experiences together.
Dr. Hays then describes his observations that pain in pediatrics was recognized, but there was a lack of urgency in clinical need to treat pain—maybe in part due to that lack of sophistication in treatment paths for pain in the early 1980s. He also recalls that psychological and social support of pediatric patients and families were not typically seen as a necessary duty to fulfill by the medical community and largely became the responsibility of the family.
The differences between primary and specialty palliative care are also defined by Dr. Hays as he describes how other hospital services met his palliative team with some suspicion and anxiety of his palliative service overstepping and usurping turf. He also explains that there will always be a need for palliative care due to the progression of medicine and more complex therapies available. When someone elects to complete these more complex therapies, they create the need for palliative care along their health care journey.
Dr. Hays describes the most looming challenge for palliative services to be funding, especially outside of wealthy institutions that can support a palliative service that generally is not reimbursed well. Dr. Hays also describes that the best thing about the palliative field now is the new generation of well-trained leaders that are stepping up to take the lead.
The interview concludes with Dr. Hays’ dream of having palliative services fully integrated and automatically consulted on every case of a leukemia or complex congenital heart disease or when a child goes on ECMO. He would like to see that palliative care professionals become viewed as integral parts of the medical team.
Biographical Information: Interviewee
Ross Hays is the director of the Seattle Children’s Hospital Palliative Care Service, the chair of the Ethics Committee, and a professor in the Department of Pediatrics. Dr. Hays trained at the University of Washington for his M.D., completed residencies in pediatrics, physical medicine and rehabilitation medicine, and a fellowship in birth defects. Dr. Hays has authored over 80 peer reviewed articles and abstracts, over 20 book chapters, has spoken at over 70 conferences domestically and internationally.
Biographical Information: Interviewer
Bryan Sisk, MD, MSCI is an Assistant Professor in Pediatric Hematology and Oncology and an Assistant Professor in General Medical Sciences as a member of the Bioethics Research Center at Washington University in St. Louis. He completed medical school at the Cleveland Clinic Lerner College of Medicine at Case Western Reserve University. He completed his clinical training at St. Louis Children’s Hospital and Washington University School of Medicine.
Dr. Sisk was a clinical fellow in pediatric hematology and oncology when he initiated this Pediatric Palliative Care Oral History Project. As a trainee, Dr. Sisk had a strong interest in palliative care, the approach to the suffering of children, and the history of medicine. Prior to initiating this project, Dr. Sisk performed an in-depth review of the development of pediatric palliative care as a discipline and philosophy. This research culminated in a publication entitled, “Response to Suffering of the Seriously Ill Child: A History of Palliative Care for Children” in the journal Pediatrics. However, this historical review was limited to textbooks and publications. It lacked the personal experience of caring for these children and inspiring the development of a new clinical discipline. Inspired by David Clark’s oral history of the adult hospice movement, Dr. Sisk began to plan this pediatric oral history project.
Of note, this collection of oral histories is incomplete, and many important figures have not (yet) been interviewed. Dr. Sisk’s goal is to continue adding to this collection create a rich repository of personal insights and wisdom from leaders who changed the field of pediatrics.
Interview Date
2019-09-03
Collection Identifier
OH154-S17
Length
Approximately 53 minutes.
Restrictions
Users wishing to publish (in whole, or in part) content taken from the audio or transcript of this oral history interview must request, sign, and return a Statement of Use form to the Becker Archives. For detailed information regarding publication and use of this oral history, contact the Becker Archives (arb@wusm.wustl.edu).
Recommended Citation
Ross Hays Oral History, OH154-S17, Bernard Becker Medical Library Archives, Washington University in St. Louis.
Disclaimer
The Becker Archives provides access to this oral history interview as a record of the past. This interview reflects the attitudes, perspectives, and beliefs of the interview participants, which may reflect outdated, biased, and offensive views and opinions. The Becker Archives does not endorse the views expressed in this interview, which may contain materials offensive to some users.
Notes
Access to the audio recording for this oral history may be obtained via approval of the archivists at Becker Library. Contact the archives for more information (arb@wusm.wustl.edu).