In this oral history project, Dr. Sisk performed interviews with 35 individuals with notable roles in the development of pediatric palliative care as a discipline and a philosophy. Dr. Sisk was a clinical fellow in pediatric hematology and oncology when he developed this project and performed the interviews. He had rigorous training in qualitative research and a strong interest in history related to children’s pain and suffering. Selection of participants was based on review of the historical literature for a prior publication related to this area (*). Additionally, Dr. Sisk asked interviewees for recommendations for other potential participants. During interviews, he followed an interview guide, but he also allowed the interviewee to redirect the conversation.
These interviews were all recorded remotely, either via telephone or video-conferencing software. Audio files were professionally transcribed and proofed for grammar and accuracy. Interviewees were allowed to review these transcripts and make grammatical corrections. Also, interviewees were allowed to suggest additions or retractions from the transcript to ensure their meaning was clear. We marked all additions with brackets and all retractions with ellipses. In consultation with the Washington University Institutional Review Board (IRB), this project was not deemed to be human subjects research, and thus was not subject to review by the IRB.
An oral history with Dr. Myra Bluebond-Langner was included as part of this project, but has restricted access. Please contact Becker Archives at arb@wusm.wustl.edu for more information regarding access.
(*) Sisk, Bryan A., et al. “Response to Suffering of the Seriously Ill Child: A History of Palliative Care for Children.” Pediatrics, Volume 145, Number 1, January 2020, e20191741.
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Balfour Mount Oral History
Balfour Mount
Balfour Mount was interviewed by Brian Sisk on August 1, 2019 for approximately one hour and 11 minutes for the Pediatric Palliative Care Oral History Project.
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Stacy Orloff Oral History
Stacey Orloff
Stacy Orloff was interviewed by Brian Sisk on June 27, 2019 for approximately one hour for the Pediatric Palliative Care Oral History Project.
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Danai Papadatou Oral History
Danai Papadatou
Danai Papadatou was interviewed by Brian Sisk on June 25, 2019 for approximately one hour and 11 minutes for the Pediatric Palliative Care Oral History Project.
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Stacy Remke Oral History
Stacy Remke
Stacy Remke was interviewed by Brian Sisk on December 10, 2019 for approximately 55 minutes for the Pediatric Palliative Care Oral History Project.
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Neil Schechter Oral History
Neil Schechter
Neil Schechter was interviewed by Brian Sisk on June 28, 2019 for approximately one hour and 30 minutes for the Pediatric Palliative Care Oral History Project.
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Donald Schumacher Oral History
Donald Schumacher
Donald Schumacher was interviewed by Brian Sisk on July 12, 2019 for approximately 53 minutes for the Pediatric Palliative Care Oral History Project.
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Barbara Sourkes Oral History
Barbara Sourkes
Barbara Sourkes was interviewed by Brian Sisk on July 19, 2019 for approximately one hour and 17 minutes for the Pediatric Palliative Care Oral History Project.
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Eric Stephanson Oral History
Eric Stephanson
Eric Stephanson was interviewed by Brian Sisk on December 13, 2019 for approximately one hour and 5 minutes for the Pediatric Palliative Care Oral History Project.
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Gary Walco Oral History
Gary Walco
Gary Walco was interviewed by Brian Sisk on August 24, 2019 for approximately 48 minutes for the Pediatric Palliative Care Oral History Project.
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Joanne Wolfe Oral History
Joanne Wolfe
Joanne Wolfe was interviewed by Brian Sisk on September 20, 2019 for approximately 55 minutes for the Pediatric Palliative Care Oral History Project.
